... alone plays a child who keeps blinking his eyes and bending his wrists, all of which affect the game he so desperately wants to play with the other kids who just are not there. Do you see a lonely child waiting on his friends or do you see a child with Tourette's Syndrome???
The very first thought that shoots through my head is... Does he see the very best pediatric neurologist? Do his parents even know whats going on with their child?The first action I took was the eye doctor. My son blinks his eyes a lot because he simply can't see. Which it did turn out that he did have irritation on the inner eye. Gave him RX drops and all was fixed.
Though with the weeks to follow, the drops didn't "fix" him. So onto the next doctor, his family doctor. He agreed that Logan was for sure experiencing what typical Tourette children go through. The visits don't end there. He said Logan needs a neurologist, a pediatric neurologist, not a neuro that will see a child. So the quest for the best set sail.
All of which falls under the question:
Are you aware of Tourette's Syndrome???
Tourette's Syndrome (TS- let's be honest; it's so much quicker to type!) The following facts are from Neuroscience for Kids:
* Basic cause of TS is unknown, but it's probably caused in the part by an abnormal gene that alters how the brain uses the neurotransmitters such as dopamine, serotonin and norepinephrine. A neurotransmitter is a chemical that carries a signal from one nerve cell to another.
* First symptoms are facial tics such as eye blinks.
* The symptoms generally decline in severity after puberty. In 20-30% of cases symptoms disappear entirely as a person ages into their 20's.
* TS does not affect ones IQ
* Motor tics can be classified as simple or complex. Simple are abrupt, brief movements that occur in a single and isolated fashion, basically there are no other tics experienced at the same time. Complex are a series of movements. Both simple and complex tics are involuntary. They both come across as disruptive and purposeful. Then come the verbal tics. Misconstrued that verbal tics are yelling obscene words, they can vary in sniffing, throat clearing and grunting. About 15% of people with TS yell obscene words, this is called Coprolalia.
A Tic At A Time was created for many reasons that came before the name of the site. Being a single mom of a child with TS, I desperately wanted to connect with other moms, as well as dads, as we share the same questions, 'Why me\my child?' A lifetime of added fears. I wanted to know ' Am I the only one who can't sleep at night? Do I feed into his tics?' AM I MAKING THIS UP, DOES MY FOUR YEAR OLD REALLY HAVE TOURETTE'S, OCD, AND ADHD???
The support groups I found online were just too far and in heavily populated towns. I will always see Yorkville as a small country town. With the statistics that 1 in 100 has TS there are families close to me that walk the same path, I will not be alone. I met the Larson Family and knew right away I will have the support I crave but also desperately need. I will not let another family feel as if they are alone in the world of the unknown.
Bill at 27 has Tourette's, OCD and AdHd. Having him in my life gives me the comfort knowing that Logan will have the love from the both of us but the knowledge Bill will give Logan is more than just an ease on my fragile, worried heart. A Tic At A Time... These 5 words get me through rough patches I must face daily. These 5 words can change the world, the world that Tourette's inhabits.
www.aticatatime.com video made for aticatatime.com and created by webmaster (and fellow Patch blogger) Jen Slepicka at www.peeka.info
Anonymous
8:21 am on Thursday, April 12, 2012
My son recently received the diagnosis of TS. I appreciate your effort to educate others about this disease. Although Tourette Syndrome is not life threatening, it certainly is life changing. We must stay strong and give these kids all the love and support we can so they know that to be a bit different is okay!
Brooke Elizabeth
4:58 pm on Thursday, April 12, 2012
Thank you so much for your response. The diagnosis of TS has been difficult on myself as well as our family, but thankful that Logan has TS, TS does not have him nor does it have me. I have a wonderful support system within my family and friends and pray you and your family has the same. How old is your son?
Soon we will have a support group up and running here in Yorkville for the surrounding towns. Our website, though brand new will be a great source of information as well as a place to openly speak of our daily struggles as we see our kids continue on this path. I met my fiance in hopes to hear another moms story and happen to fall madly in love with him. Bill was diagnosed at the age of 8. Now holds a full time job, is a personal trainer, training to be a boxer and now co-founder of A Tic At A Time. There is plenty of hope our boys will grow up in this tough world of scrunity to become very sucessful. Please feel free to contact me at anytime via email aticatatime36@gmail.com
Hope to hear from you soon :)
christine
8:47 pm on Thursday, April 12, 2012
I was pleasantly surprised to see this come up on my patch feed. I am a mother of a 22 year old son who was diagnosed at age 5. I would love to have a support group with other parents and those diagnosed with TS. Children need to know they are loved and supported and encouraged that TS will not hold them back from anything they want to do in life.
Brooke Elizabeth
11:19 am on Sunday, April 15, 2012
Christine! Thank you so much for reading and expressing your want for a group. Funny this mornng at church I have found yet another family blessed with Tourette's. I say blessed for the simple reason it is a blessing to be able to have a child also one with TS, it has opened my eyes and overwhelms my heart to want to reach out to other families. Like I said before Logan and my fiance Bill have TS (as well as OCD and ADHD) it does NOT have them. Im thinking within the next month we will have our first meeting. It will be posted on the website as well I will blog about when. The location is Harris Hill in yorkville, that way the kids can play, maybe your son will want to help with the kids, there will be Bills mom to help with activities for the kids. He can be yet another role model for younger kids. The girl i learned of today is 18 and struggles real bad. If anything maybe he can speak to us parents. Whatever he feels comfortable with, even if the first time he just sits there if he comes at all. I would be honored to have you at the meeting. Also if the weather is not awesome Bills mom offered to host at her house, plenty of room for all! Snacks will be provided and fun things to do!!! I really look forward to speacking with you. You can contact me directly at aticatatime36@gmail.com